Canada Launches First Registry for Rare Colorectal

A new registry has been launched in Canada to track the health of children born with a rare congenital condition that affects the colon and anus. The registry, called COCOE, will follow children from birth to age 18 and collect data on their quality of life, bowel function, and overall well-being. This is an important step towards providing better care for these children, who often require lifelong treatment and support. By studying this population over time, researchers hope to identify factors that can improve outcomes and inform healthcare planning, ultimately leading to more equitable transitions to adult care.